Hear from our Families
"With the help of NoahBRAVE, we were able to get our 5-year-old daughter, Kenzie, life-flighted home to North Carolina from California to spend her final days surrounded by family in the comfort of her own home. During these difficult times when you are worried about the well-being of your child, anything that can be taken off your plate financially is a blessing. There is also a peace and comfort in the support they provide personally. Thank you NoahBRAVE!" - Meghan Scoggins, Kenzie's Mom
"When we first found out that my son had DIPG, our world stopped. There were so many doctor appointments, hospital visits, phone calls, therapy sessions and just getting from point A to point B. I couldn't even think straight and my only objective was to keep Joseph as happy and comfortable as possible. This isn't as easy as one would think, with bills and obligations that continue to come due. We were very fortunate to have the assistance of The NoahBRAVE Foundation. This group helped out my family tremendously. We were able to focus on Joseph's care and well-being without any added stress. The ability to spend even an extra few minutes with my son is priceless. We owe a huge debt of gratitude to NoahBRAVE. Thank you for making Joseph a priority and giving us the time to spend with him by taking care of other things for us. And for continuing to help us while we are still grieving. I don't know what I would do without the help that I still need." - Luigina Capi, Joseph's Mom
"I want to give a special thanks to NoahBRAVE from the bottom of my heart. When my daughter passed away, I didn’t have anything left in my bank account. All my money was spent trying to save her life. NoahBRAVE came through like a hero and carried me through the toughest moment of my life. They even helped me pick up the pieces until I could fully function on my own. I don’t have enough words to express my sincere gratitude towards this organization. NoahBRAVE definitely makes this hurting world a better place. Thank you NoahBRAVE." - Rita Bissainthe, Adelle’s Mom
"The NoahBRAVE Foundation has been here for our family during the most difficult time of our lives. Our son, Thomas, was diagnosed at 19 with DIPG/DMG causing him to lose his abilities for the last 6-months of his life. He battled for 17-months altogether, which he endured courageously.
At this point he needed more hands-on care, so my husband and I embraced it fully, caring for him and we did so with with great honor. My husband stopped working, which totally impacted our finances. Life had become uncertain. Our focus was our son. He had a strong will to live and so we honored his wishes all along his journey.
The kindness and generosity of the NoahBRAVE Foundation has truly made all the difference. With their support, paying our mortgage over several months, it took that financial burden off our shoulders, which was a tremendous relief. Words cannot express how grateful we are. We are forever thankful to the NoahBRAVE Foundation." - Michelle Davis, Thomas' Mom
"It is difficult to figure out how to correctly say thank you to NoahBRAVE for your kindness and support. Thank you for sharing about Noah, and for all the encouragement and kindness. Your help with our mortgage payment eased some worries and not only helped with medical expenses, but allowed us to say "yes!" to our child's request for a new baseball glove. You've directly supported us in our hopes to travel this journey holding onto joy and love as we do." - Parent of DIPG/DMG Child
We are a family from Chile. Our little boy, Santi, was diagnosed with DIPG on October 31, 2023. We were able to enter the SonALAsense Clincal trial with our little boy in Miami, at Nicklaus Children's Hospital. Later, he received Everolimus and Ribiciclib at the same hospital. Since we arrived in the USA, NoahBRAVE has been a fundamental support for us and Santi throughout his fight. Our fight would have been even harder without NoahBRAVE’s support and efforts. We will never forget Lori and the support her foundation gave us. Always guiding us, helping us and giving us lots of love. Our little boy passed away on December 3, 2024. And even then, NoahBRAVE supported us. We will be eternally grateful. In honor of our Santi, and following NoahBRAVE's example, we created a foundation to help other children with DIPG in Chile. www.fundacionspc.org. Thank you so much, NoahBRAVE!!
- Mauricio Pizarro. Santi’s Dad.
